MPH Plumbing supports Torquay family
MPH Torquay has donated materials to The Wilton family to help support their son Frazer.
In September 2017, Frazer’s family realised his speech was not developing as it should and he was falling frequently. On the day after his 5th birthday, the Wilton’s were given the devastating news that Frazer's MRI has shown a significant shrinkage of his whole brain. The blood results showed Frazer has Late Infantile Battens Disease.
This is an extremely rare disease where 5-6 children are diagnosed with late-infantile Batten disease each year in the UK. It is estimated that there are between 30 and 50 affected children in the UK. Children are healthy and develop normally for the first few years of life. Children become less able and gradually skills such as walking, playing, vision, eating and speech are lost. By the age of 6 years, most will be completely dependent on families and carers for all their daily needs. Some children get frequent chest infections. Death usually occurs between the ages of 6 and 12 years.
Frazer’s mum, Amy said “The development of the extension has already proved invaluable and enabled us to adapt the ground floor of our home to ensure that Frazer has a lot of room to move around comfortably and safely, a large bedroom with sensory and medical equipment and a fully equipped wet room. We now have a large lounge and new kitchen, central to the house, where we can spend time together. We are spending more and more time at home as Frazer’s condition deteriorates so having this new environment has made a huge difference.”
MPH were able to donate many materials to go towards the build of a new extension and wet room.
If you would like to follow Frazer’s journey, you can keep up to date on his Facebook page ‘Fun Days for Frazer’ or donate to his Just Giving page.